Tuesday, April 28, 2009

Boo Hoo

I'm so easily depressed nowadays. My mind keeps on straying to the weird sensation at the back of my neck. Guess it will always be there and I have to get used to it. Macam ada belangkas melekat di belakang.
I went to a well-known Chinese Dr last Sunday. He took a look at my x-rays and gave a sigh. Saya pun ikutlah...sigh....my heart just went down further into the sinkhole.
He asked me 1 question ' How old are you? ' and I told him. 'If you are having pain at this age, how will it be when you are 50?' I just smiled. He is actually a nice old gentleman but at that time I just felt like I was slapped right across the face. Sedih bah..
I have to keep on having therapy every week and I should refrain from bending my head down too much. Macam robotlah jadinya....

For months I kept on looking over the web trying to find the answer to my condition. I got the answer this time. Klippel-Feil Syndrome. It is an uncommon congenital fusion of the Cervical vertabrae, whether it involves 2 segments (like mine, which is C4 and C5), or the entire cervical spine (which is most severe). Congenital cervical fusion is the result of failure of normal segmentation of the cervical bone precursors (called somites) during the third and eighth weeks of life. Majority of patients are female with a prevalence of 1 in 42,ooo births.
Hmmm...talking about luck.

Patients of this syndrome can be identified at any age. Cosmetic deformity that is associated with massive fusions is usually noted in infancy or early childhood. However, cervical fusions at the lower level (like mine), considering as non-massive, often do not present until later in life (30's +), when degenerative changes or instability of adjacent segments develops.

The website post this warning. Apalagi tambah sejuklah si kawan ni.

All patients with congenital cervical fusion should avoid body contact sports as well as any recreational activities that may put them at risk for head trauma.
The potential of catastrophic outcomes with this structural abnormalities is very real and must be kept it mind throughout the life of the affected individual.
Long term follow up is highly recommended. Patients and his/her family must be carefully and fully counselled.

I kept on thinking of all the activities I did during childhood and teens. All of them actually was risky to me but I'm glad I did them. No regrets at all.
Still, I am sad, but for today only.
Lantaklah! Life is short, I better stay happy.

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